Sawyer’s Race for Research

Sawyer, patient with FAOD, and his family

A Family’s Fight for A Cure Sawyer, a 9-year-old from Bowling Green, Kentucky, is a joyful, silly, extroverted kid who enjoys meeting new friends. “Sawyer loves his people, and he loves them fiercely,” his mom, Katie shares. “I’m constantly in awe of his strength.” A Life-altering Diagnosis When he was still a toddler, Sawyer began […]

Rare Impact Award Given to UPMC Children’s Researcher Dr. Jerry Vockley

Dr. Vockley standing at his lab bench

The National Organization for Rare Disorders (NORD) awarded Dr. Jerry Vockley with the prestigious Medical and Scientific Trailblazer Award at the Rare Impact Wards. Rare Impact Awards recognize individuals driving progress for rare diseases. Dr. Vockley serves as director of the Center for Rare Disease Therapy and chief of the Division of Genetic and Genomic Medicine. Dr. Vockley […]

From Patient to Champion: Jordy’s Journey with XLP2

Every year, local member hospitals of Children’s Miracle Network Hospitals (CMN) identify a “Champion” within each local community to serve as the face for children treated at their local children’s hospital. These ambassadors spend their year advocating for the charitable needs of children’s hospitals across the U.S. and Canada. Meet UPMC Children’s 2025 CMN Champion, […]