How Donors are Fueling Ewing Sarcoma Research

For Kelly Bailey, MD, PhD, Ewing sarcoma is more than a rare and difficult-to-treat bone tumor that predominantly affects teenagers. It’s the focal point of her research and the primary reason she practices medicine.

Sydney’s Story

Sydney was diagnosed with a rare genetic disorder called Urea Cycle Disorder / Ornithine Transcarbamylase deficiency (UCD/OTC) at just one year old.

Jimmy’s Life Defying the Odds

Jimmy, patient with an inoperable brain tumor

At four months old, Jimmy was diagnosed with an inoperable brain tumor and borderline hydrocephalus, and the prognosis looked grim.