Donor Spotlight: The Legacy of Angels Foundation When their first grandchild Makayla was born, Sue and Paul Rosenau knew that the baby girl with the big blue eyes would make her mark on the world. Now, nearly 13 years after Makayla’s untimely passing, the Rosenaus understand just how special their Makayla was – and just how inspirational their little angel continues to be. When she was only two, Makayla lost her battle with Krabbe disease, an inherited condition caused by a faulty gene. Five years to the day after Makayla’s death, the Rosenaus’ lives were turned upside down again when they unexpectedly won the Power Ball – a jackpot totaling $180 million. Struck by the remarkable timing of the win, the Rosenaus determined then and there that they would do everything in their power to use their improbable windfall to better the lives of children like Makayla. In 2008, just a few months after their lottery win, the Rosenaus founded The Legacy of Angels Foundation (TLOAF) to fund research into improved treatments for Krabbe disease as well as cystic fibrosis. Here at Children’s Hospital of Pittsburgh of UPMC, the Rosenaus have contributed more than $5 million through TLOAF in support of the Program for the Study of Neurodevelopment in Rare Disorders (NDRD). Led by Maria L. Escolar, MD, MS, one the world’s leading experts on Krabbe, the NDRD program draws patients from across the United States and around the world. TLOAF’s two most recent grants to the program will support the area of gene therapy, and also care of patients with Krabbe disease, and Krabbe research. With the tremendous support provided through TLOAF, Dr. Escolar hopes that the work of the NDRD program will continue to advance improved care for children battling rare diseases like Krabbe – children just like Makayla. The Rosenaus have big hopes for the future, too. Their vision remains a world in which no child suffers as Makayla did. And with her as their inspiration, they have every intention of pursuing this vision to honor the legacy of their special angel.